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LYME
HEARINGS IN MASSACHUSETTS
The Joint Massachusetts Legislative Committee on Public
Health has announced that there will be a Public Hearing
on Lyme Disease beginning 10:00 am, Wednesday, October
12th in Hearing Room A-1 at the Massachusetts State
House, Beacon Hill, Boston.
The program will begin with testimony from an expert
panel consisting of:
• Brian Fallon, MD, MPH Columbia University College of
Physicians and Surgeons; Director, Lyme Disease Research
Program, NY State Psychiatric Institute; Principle
Investigator for N.I.H. Chronic Lyme Retreatment Study
• Daniel Cameron, MD, MPH Principle Investigator, WIRB,
Lyme Double-Blind Randomized Placebo-Controlled Study;
Board of Directors, ILADS; Private Practice, Mt. Kisco,
New York
• Charles Ray Jones, MD Private Practice: Pediatric and
Adolescent Lyme Disease, New Haven Connecticut
• Patricia V. Smith, President, (national) Lyme Disease
Association, Inc.; Vice President, Political Affairs,
ILADS (International Lyme & Associated Diseases Society)
The general public will then be invited to testify. Lyme
patients from everywhere are welcome; however,
Massachusetts residents will be given preference
regarding testimony. Although legislators have asked the
public to testify “from the heart,” written notes and/or
cards will be permitted. Time will be limited to 5
minutes (IMPORTANT, one to two typed pages is about 5
speaking minutes; there is, however, no limit to the
written testimony that you may choose to submit to the
Public Health Committee). Bring your written testimony
to the hearing, and please forward a copy of your
statement by October 1 to:
E-Mail:
[email protected]
FAX: (508) 563-7780
Snail-Mail: Massachusetts Lyme Disease Coalition
P.O. Box 1916
Mashpee, MA 02649
TRANSPORTATION: Early on Wednesday October 12th we
expect to have buses leaving from a number of locations,
contacts below:
(1) Cape Cod: Nancy (508) 362-3189
[email protected]
(2) North Shore Kay 978 468 6336
[email protected]
(3) Fall River Janice (508) 636-9000
[email protected]
(4) Western Massachusetts. Carla (413) 569-5800
[email protected]
(5) Rhode Island Rick 401 847 2657
[email protected]
(6) New York/Connecticut Ellen 212 799 2554
[email protected]
A Large Turnout is as important as the quality and
quantity of Personal Testimonies. Please bring your
children, spouses and other family members. Drs. Jones,
Fallon & Cameron and Pat Smith are all traveling a long
distance and sacrificing much to help us make this into
a successful event. This is THE opportunity that we have
been waiting years for! The Massachusetts Legislature
has never, EVER held hearings on Lyme disease at the
State House in the past; let's not be faint of heart
but, rather, let's all 'seize this moment!' with our
cogent and coherent testimonies and our OVERWHELMING
attendance! We have, at this event, the opportunity to
begin changing conditions for Lyme patients here in
Massachusetts and nationwide.
I hope to see you ALL at 10 AM sharp on Wednesday
October 12th at the Massachusetts State House (Hearing
Room A-1)! Note: For those coming in private cars,
parking is underground about ¼ mile away. Allow extra
time).
Sincerely,
John Coughlan
Director
Massachusetts Lyme Disease Coalition
Ph: (508) 563-7033
TESTIMONY TO MASSACHUSETTS COMBINED HEALTH COMMITTEE
By Pat Smith, President, Lyme Disease Association, Inc. 10-12-05 |
